Resources
A Guide For Carers
Are you caring for someone with a life limiting condition? Sometimes it can be difficult to know what to do or what help and support is available.
Hospice NZ has designed a helpful booklet to answer some of the questions or issues that might arise as part of this journey.
It is important to remember you are not alone.
There are few experiences more difficult than caring for someone at the end of their life. Each of us faces death as uniquely as we lead our life. We all hope that when death comes it will be as peaceful and dignified as possible. We also hope we'll face it feeling comfortable in our surroundings, well cared for and that those
we love are well supported.
Topics covered in this useful guide include caring for a loved one at home, circles of support, home nursing tips and many other practical matters.
Thanks to the support of the Pub Charity, Hospice EBOP can supply copies of A Guide for Carers to patients' families.
Useful Podcasts
Ending Life Well – the Otago Community Hospice produced podcast series for family carers – has hit 8000 downloads since launching in 2022. The podcast was created to provide accessible information for family carers who have been thrown in the deep end caring for loved ones who are dying. You can listen to their podcast on the Otago Hospice website here or by searching "Ending Life Well" on your favourite podcast app.
Please feel free to share the podcast link if you think it would be helpful for loved ones.
Conversations with Annalisa Barbieri – What to Expect When Someone Dies, with Dr Kathryn Mannix.
"This episode was a highly personal project, borne out of sitting with my dad as he was dying and realising I didn't know what to expect. I learnt that night that dying is a bit like birth, but in reverse. It's a process. Finding out about death and dying really helped me not only understand what was happening but make some sense of it. Here I speak to palliative care doctor Kathryn Mannix who has witnessed many people dying. If you think this might be scary, trust me it's actually reassuring and strangely calming." Annalisa Barbieri.
Helpful Videos
Mouthcares at End of Life
Bed wash, Change Incontinence Product and Linen
Subcutaneous Medications
Slide Sheets
Catheter Use
Changing a Syringe Driver
Useful Links to End of Life Care
Useful Links to Help You Plan
Subsidies and Support
Hospice Standards for Palliative Care
These Standards have been developed by Hospice NZ to support all hospice services to deliver consistent and best quality palliative and end of life care for people regardless of locality and diagnosis.
In May 2019 they launched the fourth version of the
Hospice NZ Standards after an extensive consultation and review process involving all hospices services in New Zealand.
There are 9 Standards covering things such as assessment of needs, grief support and bereavement care and culture within an organisation.
The vision for the Standards is that they support hospice services continuous quality improvement approach to service planning.
In the first instance they are written solely for hospice palliative care providers, the longer term vision is that other providers of palliative care across many settings will adopt or use the Standards.
Strategic Plan
The Strategic Plan is available to download here. This document defines the direction Hospice Eastern Bay of Plenty will take in the next few years. It includes our vision, goals, mission statement and the actions we will take to achieve this goal.
Annual Plan
To download a copy of the Annual Report from 2024, please click on the link below.
Additional Links
Here is a list of links that might be helpful.
Continence Association: Bladder & Bowel helpline 0800 650 659
Depression Helpline: 24/7 Support
Healthline: Free 24-hour health advice
Ministry of Health and DHB contacts
Motor Neurone Disease Association
Multiple Sclerosis Society of NZ
Prostate Cancer Foundation of NZ
Skylight: grief and bereavement resources